Lung Transplant Episodes

Matison Deaton is a remarkable woman, with perseverance that most cannot even imagine. She was diagnosed with cystic fibrosis when she was 1 1/2 years old, so her life was filled with lots of doctors’ appointments and all kinds of things that kids just shouldn’t have to experience. She knew from a young age that she may one day need a lung transplant. Her doctors didn’t tell her she had kidney disease – she found out from her “after-visit summary” and later learned she would need both a double lung and a kidney transplant. Mattie also found out from her notes that she was estimated to have 5-7 years left to live. It was 6 years into this span that she finally found a transplant center willing to take a risk, the University of California at San Francisco (UCSF). This was only after being rejected 13 times from other centers, due to being thought to be “too high risk” because she had a multi-drug-resistant lung infection. Mattie says that it was almost “out of spite” that she kept tryin…